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  • McKenna Ciolino, 2, of Gloucester, sits on the floor of a classroom at Eastern Point Day School as she watches students make toys and crafts that suit her and children similar to her: those diagnosed with Emanuel syndrome. Her mother, Chelsie Larry, brought her to the Gloucester school on Tuesday morning so that students could learn about the syndrome and meet McKenna. Jesse Poole

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  • Sixth-grader Noka Flynn asks McKenna Ciolino, 2, who is diagnosed with Emanuel syndrome, which sticker she likes best. Jesse Poole

    6310493GT.jpg

  • McKenna Ciolino, 2, of Gloucester, sits on the floor of a classroom at Eastern Point Day School on Tuesday morning as students work on crafts and toys that would appeal to her and other children like her: those diagnosed with Emanuel syndrome. Jesse Poole

    6310688GT.jpg

  • Third-grader Anabelle Palumbo, left, and McKenna hold hands. Jesse Poole

    6310492GT.jpg

  • Chelsie Larry of Gloucester talks to a small group of students at Eastern Point Day School about Emanuel syndrome, a rare chromosome abnormality that her daughter McKenna Ciolino, 2, is diagnosed with. Jesse Poole

    6310687GT.jpg

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February 17, 2012

Learning about Emanuel Syndrome

By Allegra Boverman Staff Writer

Students at Eastern Point Day School in Gloucester learned about Emanuel syndrome on Tuesday morning.

Gloucester resident Chelsie Larry brought her daughter McKenna Ciolino, 2, to visit the school and talked about the rare, genetic condition that affects her daughter.

Emanuel syndrome is an inherited chromosomal disorder that disrupts normal development and affects many parts of the body.

Infants with Emanuel syndrome have weak muscle tone, and fail to grow at the expected rate. Their development is significantly delayed, and most affected individuals have severe to profound intellectual disability.

Students played with McKenna and made toys she could play with, including some peek-a-boo learning toys.

Students also learned how to adapt other toys to accommodate children with various disabilities.

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